23 Jun Happiness despite illness
Although, as many regular readers would know, we frequently encourage those seeking happiness to also attend to their health. In our courses and coaching we emphasise that happiness is much easier for those who’re not sick and tired.
At the same time, however, pain and illness does not necessarily preclude happiness – as this recent study shows…
HIGH QUALITY OF LIFE IN SPITE OF VERY SEVERE DISEASE
Patients with amyotrophic lateral sclerosis (ALS) experience an astonishingly high quality of life. This disease leads to progressive muscular weakness and the clinical course is always fatal. In spite of the continuously increasing loss of control, studies performed by Birbaumer et al. (TêÑÔ_bingen) and Ludolph et al. (Ulm) and reported in the current edition of Deutsches êÑ_ã_rzteblatt International have shown that many ALS patients are satisfied with their lives. (Dtsch Arztebl Int 2008; 105(23): 397-403)
The authors showed that the quality of life of ALS patients does not depend on the severity of their physical restrictions. In contrast, it was found that patients who have to be given artificial respiration are more satisfied than patients for whom this is not necessary. Although an outside observer would have expected ALS patients to be depressed, as the disease is so serious, this was only the case for 10% of patients.
This means that the proportion of depressive disorders is only slightly greater than in the overall population.
In view of the public discussion on euthanasia and assisted suicide, the authors think it essential that there should be a scientific investigation of the quality of life, as seen by the patient. The present studies show that the quality of life of patients with a fatal degenerative disease does not necessarily have to differ from that of healthy subjects.
In an accompanying editorial, Professor Hans FêÑÔ_rstl points out the significance of these studies for the discussion of measures to shorten life. These could no longer be simply justified by saying that the patient had to be freed from his suffering. FêÑÔ_rstl commented that the suffering is seen by the observer and not felt by the patient.